“You will have this for life, there is no cure for what you have, and your best solution is to try and live healthy and when it gets out of control (you guessed it) use your steroid cream to help stabilise it.”
This was the message given to us when my son was young and suffering with severe eczema. Nights of pain and discomfort became part of our lives, despite endless visits to doctors and specialists, countless lifestyle changes, and trials of various treatments.
Nothing brought lasting relief. We moved from one practitioner to another, trying everything from medicated creams and dietary changes to naturopathic solutions. Nothing worked. His eczema was relentless, flaring to such extremes that further medical intervention was sometimes unavoidable.
Hoping for answers, we sought out a highly recommended specialist. Instead of hope, we were told there was no known cure. The words left us devastated. As a parent, I remember thinking:
“Why would you go through all that training to become a specialist, only to leave people with no hope?”
It was not just disappointment, it was anger that the very system we turned to left my son worse off emotionally than when we walked in.
Years passed, and the struggle continued. At 19, another shock came when my son was diagnosed with cataracts in both eyes, a rare condition for someone his age. We paid privately for surgery, unwilling to let him wait up to two years on the public system. The specialist could not explain how it had happened.
The turning point came when we started reading vaccine inserts and saw eczema listed as a potential side effect. We then discovered that steroid creams, the treatment we had been told was essential, have been linked to cataracts in young people. For the first time, the pieces of the puzzle began to make sense.
Looking back, it is clear who benefitted. The medical industry. Doctors and pharmaceutical companies made thousands of dollars out of my son’s suffering while offering no answers. It felt as if he was treated as nothing more than a profit unit in a trillion dollar industry.
For our family, the cost has been immense in financial, emotional, and physical terms. Yet out of this pain came purpose.
Our mission at Inform Me was born from this journey. We are committed to uncovering and sharing the truth about health, empowering families to make informed choices. We challenge the status quo, advocate for transparency, and offer support and hope to others navigating their own health and wellbeing journeys.
